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PH Wiki needs your help!!!!
PH Wiki provides user generated advice for patients and caregivers of Pulmonary Arterial Hypertension. PH Wiki is associated with and sponsored by PHAssociation, and compliment PHA's website.
It's important to note that the concept of PH Wiki is inherently different than what's on a message boards. With boards, you typically see more of a dialog between people. These conversations are oftentimes social or address very specific questions. Rarely do you see people post "How to" types of messages, and rarer still do you see critiques to these messages. The wiki attempts to capture the collective wisdom of the Pulmonary Hypertension community, and I can't imagine a group that has more collective "real world" wisdom than those directly impacted by the illness.
If you are new to wikis, get started here.
Selected Discussion Sections
- Advocacy for pediatric research
- Alternative Therapies
- Caregiver Resources
- Children with PAH
- Connecting with Others
- Consent issues
- Explaining PAH to others
- Financial Assistance
- Finding others
- How to stay calm and cool
- Issues for pre-teens and teens
- Medications
- Medication side effects
- Psychosocial resources
- Research
- Sports and PAH
- Traveling tips
- Taking a vacation without leaving home
- Ways to make testing easier
