Finding others

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With a disease as rare as Pulmonary Hypertension, finding others to discuss the disease and life issues can be challenging. Fortunately the Internet helps to bring together people with shared interests, and this is no exception. Included are several ideas:

  • Interact through PHwiki. Share your experiences, insights and knowledge with others in PHwiki!
  • Use Pulmonary Hypertension Associations message boards [[1] to interact with people. Categories of discussion include PH General, PH Caregivers, PH Transplant and Passages.
  • Use Pulmonary Hypertensions online chats to "speak" with others online and in real time.
  • Find others with PH in your area through an online PH map[[2]]
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